Love is….

What love is in your presence at the bedside of the dying.

Love is in the moisturising of their dry lips.

The wipe of secretions from their mouth.

The tender washing with the softest of cloths of their face and hands.

The gentle brushing of their hair.

Love is in the sponge mouth swabs that ease the dryness.

Love is in the way your hands touch those of your dying loved one – the way you feel their knuckles and the soft bits of skin between the fingers, the caressing from the wrist to the fingertips and the stroking of the palm.

Love is holding back from touching when it cannot be tolerated despite your yearning to feel their skin against yours.

Love is in that gentle hand hold that ushers in a sense of support – I’m here with you.

It’s there when you lay your head next to theirs, close your eyes and just feel their presence.

Love is witnessing the difficult changes but staying there anyway.

It is being eaten up by grief as you watch your loved-one fade away ….. but staying there anyway.

It is getting up every day to care when your whole being is utterly exhausted.

Love is in your gaze as you look at their changing body yet remember times of vigour and youthful energy.

Love is listening to the rattling in their throat, the groans of discomfort and witnessing the wringing of hands without turning away.

It is turning towards their suffering and letting them know they are not alone.

Love is in the words that you share.

It’s in the conversations that you have even when there is no response.

It’s in your singing.

In your humming.

Love is in the reading aloud of their favourite books or poems.

Love is in the music that you play for them.

The music you know they enjoyed when they were full of vitality.

Or the music that you know brings them comfort.

Love is knowing what tv program or film to have on in the background.

Love is knowing when silence is necessary.

Love is in the soft kiss of the lips, cheek, forehead or hand.

It’s there as you linger in that kiss trying so hard to imprint this moment of tenderness into your memory.

It’s in your vulnerability that encompasses these very moments..

Love is in your sighs of grief.

In your gentle sobs of sorrow.

In your sense of relief that any suffering is coming to an end.

In your smiles too as you recall memorable times.

Love is in the shared air that you breathe.

Their final breaths become your first breaths in your ever-changed life.

And love is a deep understanding of how colossal these moments in time truly are.

With tenderness

Nancy ❤ xx

Tending To The Soul

When I think about how to describe my service as an end of life doula in as few words as possible these four words come as close as I can get – tending to the soul.

How that looked this week was listening to someone I’m walking alongside in their last few months who talked about their fears and regrets.

We began to unravel the fears of what dying might feel for him and discuss what might bring him comfort at that time. We discussed his end of life meds and symptom control.

And I gave him space and time to process and attend to those regrets with love without trying to reframe them, deny them or put a positive spin on them.

Sometimes, when tending to people, I notice so much the family member or friend (and sometimes even medical staff) “brushing off” when the one dying shares these innermost fears, concerns, regrets. As if they don’t matter. Or they say something to placate and the dying person feels unheard, goes quiet, shuts down.

This is the time that not only the body begins to unravel and start the process of transition but so too does the heart and mind.

Just as the body knows how to die so too the heart and soul knows what it needs to find peace at the end.

If only there are people there to tend to that part of us with attentiveness, gentleness and care.

I have witnessed the most steadfast and unmoveable characters reduced to tears because no-one has been heartfully there to bear witness to this process.

It takes skill.

And a ready heart.

To tend to the soul this way.

The term soul does not belong to the realms of religion but to many spiritual , philosophical, and mythological traditions.

Perhaps, consider that soul is simply love.

This is how the ancient texts from Bhagavad Gita describes the soul.

“The soul wears the body like a coat and discards it at the time of death.”

The religious texts of Bhagavad Gita, although based on Hinduism, are approachable and relatable to all of humanity regardless of whether one follows a religious ideology or not and is considered, by some, the epitome of all spiritual teachings.

Whether you believe in the soul or not, have a different name for it, believe it is part of who you are or only reflect on it when your life is coming to an end what I attend to most as a doula is your inner comfort.

Your innermost self.

The stuff that brings peace and comfort to your heart and mind.

Again, I invite you to consider that the soul is simply love.

And I attend to that love.

In many ways.

In many forms.

How would you want your love, your soul attended to as the end draws near?

With love as always

Nancy 💚 xx